It's crazy how fast things turn around in this house. By Wednesday night Sebastian was feeling a little better but Alex was not feeling that great. I went to work at 11pm instead of 7 that night. Mainly to get kids settled in for the night but I also was feeling a little off as well.
Before he went to bed Alex complained of chest pain. He had this complaint off and on usually his heart was pounded. And it would quickly subside and he would be fine. He said on this night it felt like indigestion at one point. So he took some medicine and we went on with him going to bed. Thursday he woke to having more chest pain. I get a call at work telling me of his pain. He had taken a advil. I told him he could stay home. To my amazement he had gone on to school. I was making phone calls to doctor office to figure out what to do with this poor guy that pulse would race and now the constant chest pain. See if it were an adult I would so be in the know on what to do. When to go to the ER etc. With a kid things are so different. You don't expect a child to be having a heart attack or anything to do with his heart.
I waited for doctor call back and had checked he was good at school the pain had mostly subsided and his pulse was good. So I decided to take a quick nap being I had no sleep after work. Things quickly changed when a call came from Alex at school saying his chest was hurting again and his heartrate was up.
After 7 hours in the ER an EKG chest xray and a very annoying doctor. We were sent home with this. The EKG says prolonged QT waves but I don't think it really is anything big. Oh but no physical activity until he is cleared by the cardiologist.. UMM so which is it. Can they not be in such a hurry to get off their shift especially since we have been there that long. Still having chest pain we went home to try and figure things out.
Today he is down to a 5 in his pain score. Well that is good right. We have a appointment with a cardiologist on Wednesday. No physical activity and probably no school either till then. He is devastated he just started a new season of basketball and is playing hockey as well. Poor thing he just cried when he found out. You never want to see you kids struggle in life but you know that is something we were put here to do. But never do you imagine it would be due to medical issues. We are keeping our fingers crossed and lots of prayers going up that it isn't anything. They said it wasn't what Malcolm had. I almost wish it were. If indeed is this Prolonged QT wave syndrome that could be a far worse thing to deal with. It doesn't have the symptoms that malcolm had warning you of a problem. It just happens. You can faint, drown if swimming, die. I read through a bunch of things that could happen and all they say is becareful.
For Alex the hardest thing would be the not playing sports possiblility. His life is so wrapped up in sports. He had to sit out football last season due the head injury in the spring. So he has been eagerly waiting for spring football that starts here soon.
The other night I was having a moment of realization. There are days that things seem like they just couldn't get more stressful. With all the extra financial obligations that seem to be coming my way it gets difficult to come to a realization of how life really is good. Especially when you get into a funk. Talking to a friend the other night about how I felt like I was so fatigued and out of it because of getting to be in this funk. But that night I decided I was just going to bring myself out of it. I had to. Things suck sometimes well here lately alot. But I am blessed. Even when it doesn't seem like it. If I would pull my head out of the sand I would see more of those blessings. The next day is when all of this with Alex started. Maybe I needed that reality check before all of this started coming about.
Even with this realization of things I still have to communicate with my ex-husband and at time I wish he was head first in the sand. He acts like it is at times. Today he just really got under my skin. It's his weekend which he rarely takes. He decided he was going to this weekend. I am trying to explain the whole issue with Alex and he half listens. Which makes me mad and worries me about sending him. His statement to me all the time when I am trying to explain something going on with the kids that he needs to know for their well being. He won't listen and says just cause you are a nurse doesn't mean the rest of us can't take care of the kid. REALLY! Do we want to go there. How many years and to this date do you have the kids and not feed them properly or not at all. We aren't talking about a cut finger. And until we know exactly what is going on wouldn't it be better to listen to me. The doctor even told me not to send him to school because if something happened to him it would be better he was with me not at school where people don't know what to do.
Maybe I am over thinking this. I don't know anymore.
Have you ever gotten that feeling like you were just waiting for the other shoe to drop? I have been having a feeling something like that.Similar to it. Where there is this impending doom. Like something was wrong with one of your kids. I haven't been able to shake it for over a month. I just figured it had to do with me working nights now and not really liking the idea of not being around for them at night.
Tonight Malcolm and Cole are at youth conference. Eve going to a Beehive conference her beehive teacher is doing. Alex and Sebastian are going to there dads. Me? Need to be working on my EKG class before I actually am there on Thursday to take my test over it. But that just makes all of what is going on with Alex more real..
1 comment:
Man you just can't catch a break, can you? That's just awful...I know what you mean about sometimes having a hard time realizing the small blessings around you, story of my life. I'm just sorry your kids have had such a hard time with their health. Keep us updated on Alex and Sebastian too, and let me know if I can do anything for you!!!
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