Over the last several days things feel like they are spiraling out of control. I so try to look at the good in things find the positives in things. For some reason it is getting harder and harder to do this. Maybe if I felt better I would be processing things better.
Malcolm came home yesterday from school/marching band complaining of his chest hurting,rapid heart rate, leg pain, severe headache. Ok the symptoms are now getting worse. Friday night wasn't even this bad. And it had barely been 12 hours from his last dose of medicine. We took a couple of strips to send into the cardiologist and I gave him his night dose of medicine. He really had a hard time just moving off the couch. I finally talked him into showering to help him cool down and see if that would help relax him. I was so worried he was going to fall over in the shower. Not like a 15 year old boy wants his mom to come rushing into the shower when he is not descent.
At one point I unlocked the bedroom door and yelled into the bathroom just to make sure he was still standing. Finally about 2 hours after it all started his heart went from 190's to 98. The Doctor said to just keep watching him.
I had to stop for a couple of hours between when I started posting this and now. So let me see if I can get my head back in the game and make sense of this.
I have talked to the Cardiologist nurse several times as of now. They wanted as of this morning to move his heart procedure up to next wednesday with all things being considered. Insurance has another idea. We are dealing with insurance that started 8/1 this year after his dad changed jobs. So they have a preexisting clause that a letter needs to be sent in then it goes to committee. blah blah blah... you know the same old red tape. So for now they are increasing his dose on one of his medications to see if that will help. And we will be for vigilent with dosing times. Which is hard because he leaves for seminary so early his night dose needs to be given as soon as I see him in the afternoon.
Ok next little bit of news. I went to see my family doctor this morning. I still haven't had relief of the headache. The problem? Pseudo tumor is not the easiest to diagnose. So to tell whether it has come back or not involves multiple tests. Dr. Gaydos is putting me on a solumedrol pack and Ultram since the Vicodin makes me have CRAZY dreams like adding additional limbs.(I will tell you about that one later) So all that with the lasix and phenergan. She also had her nurse make me an appointment with the eye doctor asap. So I saw him at 1:15 today. Therefore I am sitting here typing with the medicine still effecting my eyes being dialated. So if I mispel things I apologized in advance. I go to him he seems very knowledgable.No bedside manner or little of it. He said my nerves are strung pretty tight which leaves me as predisposed but nothing to major with edema. He took some pictures and I go back to have a field test another day.
Where does this leave us? Who knows. I am having such a hard time concentrating and remembering things it is driving me crazy. Which brings me to the next challenge. Malcolm's medicine is really driving me crazy him not being able to concentrate or remember than we up it oh lord help us. This is when I home schooled him and the dates for things due could be set by me. Maybe that would only open up more issues.:)
I did go over to Michelle's house on her lunch break and Rich gave me a blessing. I am hoping that will help just ease my nerves and focus on what needs to be done. I will say it was the most interesting blessing due to their dogs who both felt they needed to give me all the attention in the world during the blessing.
I am trying to remember how this fits in the big circle of things. These are little problems that we can fix. ( I pray) Quite annoying but other than the cost for everything it can be handled. I found out if the insurance won't approve it the cost for Malcolm's procedure is well over 60,000 without anything extra being billed. YIKES!
I am now waiting on Eve to get home off the bus to take her back to the Chiropractor to see what he recommends for long term treatment. I am checking into that as an option for me too.
Life gets so crazy sometimes that it is hard to know where to start to pick up and fix things. Perspective is everything right now. I keep reminding myself that things could be much worse. I am very fortunate to have the insurance to be fighting with and the job to need to concentrate for. So for now all news and venting out I will leave it in the hands of the doctors and the Lord and pray for the best. What else can you do? Besides complain>smile>
1 comment:
I'm so sorry that you have nothing in the way of diagnosis with your pseudo tumor! That's got to be so hard, having something that is sooo hard for a doctor to actually visualize! I hope the new meds work better for you! And that everything gets worked out with the insurance soon! I'll say an extra prayer for you! Feel better, and let me know if you need anything at all! Remember, Sonia=always here!!!!
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